Hannah Deacon says it is ‘disgraceful’ that the supply of drugs helping severely epileptic Alfie will be stopped in three months – the family, from Kenilworth, Warwickshire, are considering all options. The mother of a severely epileptic boy has vowed …
child
Charlie Hughes: Parents Of Boy With Epilepsy Drop Nice High Court Challenge
The parents of a three-year-old boy with severe epilepsy have dropped a legal challenge after guidelines on prescribing cannabis were ‘clarified’. Charlie Hughes went from having up to 120 seizures a day to fewer than 20, after receiving cannabis oil p…
Mother Fears Son Could Die As Brexit Stops Medical Cannabis Supply
Government gives two weeks notice that access to epilepsy treatment for nine-year-old Alfie Dingley will end. The mother of a nine-year-old boy with a rare and severe form of epilepsy has told how she fears her son could die after the government announ…
Cannabis Oil: ‘I’ve Spent £34,000 To Keep My Epileptic Daughter Alive’
Tannine Montgomery says she has spent £34,000 and broken the law to keep her daughter alive. Six-year-old Indie-Rose, from Clare in Suffolk, has severe epilepsy and can have up to 50 seizures a month without medical cannabis oil. Since it was legalised…
Telford Girl’s ‘Miracle’ Response To Medical Cannabis
A seven-year-old with a rare form of epilepsy has made an “amazing” recovery after beginning a medicinal cannabis oil treatment, her family said. Sienna Richardson, from Telford, was diagnosed with Landau Kleffner syndrome. The family secured a prescri…
Medical Cannabis Has Saved My Daughter’s Life
Last January, my daughter Jorja became the first child in the UK to be prescribed medical cannabis. She was born with a severe form of epilepsy that had left her suffering over 30 seizures a day. By the age of just one, she was on a mix of six differen…
Mother Of Epileptic 15-Year-Old Urges Government To Provide Medical Cannabis On NHS
Charlotte Caldwell pleads with health secretary Matt Hancock to ‘intervene and stop this torturous ordeal’. The mother of a 15-year-old boy who can suffer from hundreds of seizures a day has called on the health secretary Matt Hancock to intervene and …